Just been diagnosed and will need regular blood taken to allow my body to get rid of excess iron. Does any one else have this condition and how do you cope when travelling?
Younger brother 63 years old, has same condition, (too much iron in his blood), but as yet he is not a traveller
He has a blood test, when the results come through, they decide how much blood to take from him
I have no idea what happens to the blood, as it is done through a local (Kalgoorlie area), doctors clinic
I am sure that the doctors will advise how to go about it, when you let them know that you are thinking of travelling
Hope that this info is helpful to you
I went to the blood bank on the advice of my doctor.
A friend of mine who came out from England has the condition and the blood bank will not take his blood, as he was an abattoir worker in England. He goes to the hospital , has his blood taken and it is dumped.
I have both chromosomes that result in Haemochromatitis.
When diagnosed my score was around 1400 when the 'normal' score was around <300 I think.
I went for about 1 to 2 years having 1/2 bags of blood taken monthly. !/2 because of my age.
I also eliminated red meat & made some other modifications to my diet.
I am now at around 200 and have Venesections 3 monthly.
There is is no reason that I know of why any qualified person at a Pathology clinic couldn't do the job. A Doctor at a Sullivan & Nicoladies clinic does my Venesections.
Spoke to my doctor today. I am a carrier with only one chromosome affected, Y which my father gave me. Apparently three defects occur on the chromosomes. Haemochromatosis is when the two chromosomes are affected as Guru has. Carriers can suffer from the iron overload with one chromosome affected depending on which of the three defects they are affected with. The symptoms vary. I have met two other people affected since I was diagnosed 1 1/2 months ago and one shows no symptoms, the other has very mild symptoms!
Spoke to my doctor today. I am a carrier with only one chromosome affected, Y which my father gave me. Apparently three defects occur on the chromosomes. Haemochromatosis is when the two chromosomes are affected as Guru has. Carriers can suffer from the iron overload with one chromosome affected depending on which of the three defects they are affected with. The symptoms vary. I have met two other people affected since I was diagnosed 1 1/2 months ago and one shows no symptoms, the other has very mild symptoms!
That fits.
I had no outward symptoms & the high reading was picked up in a routine test where my GP had erroneously put in the (old) code for checking Ferrite score.
It seems that this used to be a routine test but not so much these days.
I think that a high level can over time lead to a build up of iron/ferites in the organs that in turn leads to an increased risk of cancer.
I think my issue can be traced back to the Vikings raping & pillaging amongst my Irish Ancestors.
I'm now down to well inside the 'normal' limits at around 100.
Cannot believe the number of people in the last few years that have been diagnosed with this. I am starting to wonder if it could not be detected years ago.
If you are under 70 years old the Red Cross Blood Bank will take your blood.
No, if you have been a regular donor they will continue to take blood whilst you are still fit to do so. The navigator is nearly 78. Some leaches question her but when they see her record they usher her into the chair.
As stated above, the Red Cross Blood Bank is now has a centralised admin system. My navigator has given blood in most states (she is a willing donor, it's not for medical reasons.)
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PeterD Nissan Navara D23 diesel auto, Spaceland pop-top Retired radio and electronics technician. NSW Central Coast.
If you are under 70 years old the Red Cross Blood Bank will take your blood.
No, if you have been a regular donor they will continue to take blood whilst you are still fit to do so. The navigator is nearly 78. Some leaches question her but when they see her record they usher her into the chair.
As stated above, the Red Cross Blood Bank is now has a centralised admin system. My navigator has given blood in most states (she is a willing donor, it's not for medical reasons.)
You are correct, I was giving information for people who were starting to give blood. That was the rules when I started to donate blood.
I am no over 70 and still giving whole blood donations.
-- Edited by Phillipn on Friday 4th of August 2017 01:56:29 PM
Just visited a Specialist Cardiologist who reviewed all of my medical 'activities'.
As well as stopping use of Cartia (asprin) he suggested that my Iron level was getting too low for my age and I should stop the Venesections.
BTW no surgical action on the heart following an Angiogram despite extra high calcium scores. Just a medical attack on cholesterol & plaque using Statins. Hurrah. Feel better already. Oh yes a mediterranean diet with emphasis on 3 glasses of wine daily! So tree nuts & wine at end of the day is now part of my medication along with regular kayaking & bike riding. What a great specialist!
