Just been diagnosed and will need regular blood taken to allow my body to get rid of excess iron. Does any one else have this condition and how do you cope when travelling?
Phillipn said
06:32 AM Apr 28, 2017
Do a google search, their is a lot of info on hemochromatosis.
If you are under 70 years old the Red Cross Blood Bank will take your blood.
You will have to take your blood test results to show them. Give whole blood donations every 12 weeks.
That will help to reduce your iron levels.
I give blood to keep my iron levels down, now my iron levels are back to normal.
The Blood Banks main office is in Adelaide. When you phone them you are speaking to the Adelaide office. phone number 131495.
You can make an appointment for any collection centre in Australia.
-- Edited by Phillipn on Friday 28th of April 2017 06:54:02 AM
-- Edited by Phillipn on Friday 28th of April 2017 06:56:04 AM
Tony Bev said
11:56 AM Apr 28, 2017
Younger brother 63 years old, has same condition, (too much iron in his blood), but as yet he is not a traveller
He has a blood test, when the results come through, they decide how much blood to take from him
I have no idea what happens to the blood, as it is done through a local (Kalgoorlie area), doctors clinic
I am sure that the doctors will advise how to go about it, when you let them know that you are thinking of travelling
Hope that this info is helpful to you
Phillipn said
04:51 PM Apr 28, 2017
Tony Bev wrote:
Younger brother 63 years old, has same condition, (too much iron in his blood), but as yet he is not a traveller
He has a blood test, when the results come through, they decide how much blood to take from him
I have no idea what happens to the blood, as it is done through a local (Kalgoorlie area), doctors clinic
I am sure that the doctors will advise how to go about it, when you let them know that you are thinking of travelling
Hope that this info is helpful to you
I went to the blood bank on the advice of my doctor.
A friend of mine who came out from England has the condition and the blood bank will not take his blood, as he was an abattoir worker in England. He goes to the hospital , has his blood taken and it is dumped.
Lancelot Link said
06:55 PM Apr 28, 2017
Thanks for the replies, appreciate it. Doctor is doing the first couple over two weeks to see what is going to happen.
Cupie said
09:53 PM May 26, 2017
I have both chromosomes that result in Haemochromatitis.
When diagnosed my score was around 1400 when the 'normal' score was around <300 I think.
I went for about 1 to 2 years having 1/2 bags of blood taken monthly. !/2 because of my age.
I also eliminated red meat & made some other modifications to my diet.
I am now at around 200 and have Venesections 3 monthly.
There is is no reason that I know of why any qualified person at a Pathology clinic couldn't do the job. A Doctor at a Sullivan & Nicoladies clinic does my Venesections.
ps.. The blood taken is destroyed.
Lancelot Link said
01:42 AM May 31, 2017
Spoke to my doctor today. I am a carrier with only one chromosome affected, Y which my father gave me. Apparently three defects occur on the chromosomes. Haemochromatosis is when the two chromosomes are affected as Guru has. Carriers can suffer from the iron overload with one chromosome affected depending on which of the three defects they are affected with. The symptoms vary. I have met two other people affected since I was diagnosed 1 1/2 months ago and one shows no symptoms, the other has very mild symptoms!
Cupie said
10:38 AM May 31, 2017
Lancelot Link wrote:
Spoke to my doctor today. I am a carrier with only one chromosome affected, Y which my father gave me. Apparently three defects occur on the chromosomes. Haemochromatosis is when the two chromosomes are affected as Guru has. Carriers can suffer from the iron overload with one chromosome affected depending on which of the three defects they are affected with. The symptoms vary. I have met two other people affected since I was diagnosed 1 1/2 months ago and one shows no symptoms, the other has very mild symptoms!
That fits.
I had no outward symptoms & the high reading was picked up in a routine test where my GP had erroneously put in the (old) code for checking Ferrite score.
It seems that this used to be a routine test but not so much these days.
I think that a high level can over time lead to a build up of iron/ferites in the organs that in turn leads to an increased risk of cancer.
I think my issue can be traced back to the Vikings raping & pillaging amongst my Irish Ancestors.
I'm now down to well inside the 'normal' limits at around 100.
the rocket said
08:47 PM Aug 3, 2017
Cannot believe the number of people in the last few years that have been diagnosed with this. I am starting to wonder if it could not be detected years ago.
PeterD said
08:56 AM Aug 4, 2017
Phillipn wrote:
If you are under 70 years old the Red Cross Blood Bank will take your blood.
No, if you have been a regular donor they will continue to take blood whilst you are still fit to do so. The navigator is nearly 78. Some leaches question her but when they see her record they usher her into the chair.
As stated above, the Red Cross Blood Bank is now has a centralised admin system. My navigator has given blood in most states (she is a willing donor, it's not for medical reasons.)
Phillipn said
01:54 PM Aug 4, 2017
PeterD wrote:
Phillipn wrote:
If you are under 70 years old the Red Cross Blood Bank will take your blood.
No, if you have been a regular donor they will continue to take blood whilst you are still fit to do so. The navigator is nearly 78. Some leaches question her but when they see her record they usher her into the chair.
As stated above, the Red Cross Blood Bank is now has a centralised admin system. My navigator has given blood in most states (she is a willing donor, it's not for medical reasons.)
You are correct, I was giving information for people who were starting to give blood. That was the rules when I started to donate blood.
I am no over 70 and still giving whole blood donations.
-- Edited by Phillipn on Friday 4th of August 2017 01:56:29 PM
Cupie said
04:54 PM Jan 8, 2018
Late late note ..
Just visited a Specialist Cardiologist who reviewed all of my medical 'activities'.
As well as stopping use of Cartia (asprin) he suggested that my Iron level was getting too low for my age and I should stop the Venesections.
BTW no surgical action on the heart following an Angiogram despite extra high calcium scores. Just a medical attack on cholesterol & plaque using Statins. Hurrah. Feel better already. Oh yes a mediterranean diet with emphasis on 3 glasses of wine daily! So tree nuts & wine at end of the day is now part of my medication along with regular kayaking & bike riding. What a great specialist!
jules47 said
06:49 PM Jan 8, 2018
Good on you Cupie - you'll be turning your age backward at this rate!!
Just been diagnosed and will need regular blood taken to allow my body to get rid of excess iron. Does any one else have this condition and how do you cope when travelling?
Do a google search, their is a lot of info on hemochromatosis.
If you are under 70 years old the Red Cross Blood Bank will take your blood.
You will have to take your blood test results to show them. Give whole blood donations every 12 weeks.
That will help to reduce your iron levels.
I give blood to keep my iron levels down, now my iron levels are back to normal.
The Blood Banks main office is in Adelaide. When you phone them you are speaking to the Adelaide office. phone number 131495.
You can make an appointment for any collection centre in Australia.
-- Edited by Phillipn on Friday 28th of April 2017 06:54:02 AM
-- Edited by Phillipn on Friday 28th of April 2017 06:56:04 AM
He has a blood test, when the results come through, they decide how much blood to take from him
I have no idea what happens to the blood, as it is done through a local (Kalgoorlie area), doctors clinic
I am sure that the doctors will advise how to go about it, when you let them know that you are thinking of travelling
Hope that this info is helpful to you
I went to the blood bank on the advice of my doctor.
A friend of mine who came out from England has the condition and the blood bank will not take his blood, as he was an abattoir worker in England. He goes to the hospital , has his blood taken and it is dumped.
I have both chromosomes that result in Haemochromatitis.
When diagnosed my score was around 1400 when the 'normal' score was around <300 I think.
I went for about 1 to 2 years having 1/2 bags of blood taken monthly. !/2 because of my age.
I also eliminated red meat & made some other modifications to my diet.
I am now at around 200 and have Venesections 3 monthly.
There is is no reason that I know of why any qualified person at a Pathology clinic couldn't do the job. A Doctor at a Sullivan & Nicoladies clinic does my Venesections.
ps.. The blood taken is destroyed.
That fits.
I had no outward symptoms & the high reading was picked up in a routine test where my GP had erroneously put in the (old) code for checking Ferrite score.
It seems that this used to be a routine test but not so much these days.
I think that a high level can over time lead to a build up of iron/ferites in the organs that in turn leads to an increased risk of cancer.
I think my issue can be traced back to the Vikings raping & pillaging amongst my Irish Ancestors.
I'm now down to well inside the 'normal' limits at around 100.
Cannot believe the number of people in the last few years that have been diagnosed with this. I am starting to wonder if it could not be detected years ago.
No, if you have been a regular donor they will continue to take blood whilst you are still fit to do so. The navigator is nearly 78. Some leaches question her but when they see her record they usher her into the chair.
As stated above, the Red Cross Blood Bank is now has a centralised admin system. My navigator has given blood in most states (she is a willing donor, it's not for medical reasons.)
You are correct, I was giving information for people who were starting to give blood. That was the rules when I started to donate blood.
I am no over 70 and still giving whole blood donations.
-- Edited by Phillipn on Friday 4th of August 2017 01:56:29 PM
Late late note ..
Just visited a Specialist Cardiologist who reviewed all of my medical 'activities'.
As well as stopping use of Cartia (asprin) he suggested that my Iron level was getting too low for my age and I should stop the Venesections.
BTW no surgical action on the heart following an Angiogram despite extra high calcium scores. Just a medical attack on cholesterol & plaque using Statins. Hurrah. Feel better already. Oh yes a mediterranean diet with emphasis on 3 glasses of wine daily! So tree nuts & wine at end of the day is now part of my medication along with regular kayaking & bike riding. What a great specialist!
Good on you Cupie - you'll be turning your age backward at this rate!!