Hi Everyone, Does anyone travel and have rheumatoid arthritis? Would you tell us how things are for you on the road. Thanks.
NeilandRaine said
07:50 PM Jun 1, 2014
I get osteo arthritis in my lower back, don't know if they are close but Mobic and Panadol osteo help
Olley46 said
07:52 PM Jun 1, 2014
the rocket wrote:
Hi Everyone, Does anyone travel and have rheumatoid arthritis? Would you tell us how things are for you on the road. Thanks.
I am at home at the moment ,but I travel with severe rheumatoid arthritis, I am under a specialist at the present time,he has got me on Methotrexate two tablets a week, it is doing pretty good at the moment, but I do have some real bad days, believe it or not I get it in the jaw, in the groin, at the moment I have it in the hands and osteo as well,but I get by when I tow the van I have an Electric Jockey wheel that helps and an Electric drill for the wind down legs,apart from all that I just get out and do it.
Lance C
Vic41 said
08:45 PM Jun 1, 2014
the rocket wrote:
Hi Everyone, Does anyone travel and have rheumatoid arthritis? Would you tell us how things are for you on the road. Thanks.
Hi Rocket,
I have rheumatoid and psoriatic arthritis in my hands/fingers and legs, worse in my leg at the moment, also on one tab of Methotrexate per week and 2 Megafol tabs a week to counteract the Metho tabs side effects.
I recently had a cortisone injection in my knee, was good for about a fortnight, then had to take two prednisolone (solone) cortisone tabs when the pain gets too bad, this lasts for about a week, then repeat again when it happens again (about a week later). This is in addition to the methotrexate/megafol tabs. Also take Pandaol Osteo. See the rheumatoid specialist again on Friday, see what he recommends.
-- Edited by Vic41 on Sunday 1st of June 2014 08:49:29 PM
Olley46 said
09:51 PM Jun 1, 2014
Hi Vic
You sound like you have it as bad as me,I am also on two of those megafol as well as two Methotrexate a week, I had about 12 months on prednisolone 25grms down to 1 over twelve months every day, great tablets they were not a pain in the body any where,the only thing with them is they only cover up they don't cure, and they do have side affects.
Lance C
Vic41 said
01:19 AM Jun 2, 2014
We'd make a good pair Lance, my specialist started me on prednisolone for a month along with the methotrexate and megafol as he reckoned the methotrexate too that long to work, I think it was one or two tabs prednisolone for a week then half a tab for the rest of the month, then just the meth and meg, 10 mg of meth once a week and two megafol (5mg) twice a week, recently a cortisone injection in the knee and take two prednisolone when pain gets too bad (about every week) and three panadol osteo daily.
Also take tabs for other conditions as well, keeping the chemists happy though.
villatranquilla said
03:31 PM Jun 2, 2014
I am at home at the moment ,but I travel with severe rheumatoid arthritis, I am under a specialist at the present time,he has got me on Methotrexate two tablets a week, it is doing pretty good at the moment, but I do have some real bad days, believe it or not I get it in the jaw, in the groin, at the moment I have it in the hands and osteo as well,but I get by when I tow the van I have an Electric Jockey wheel that helps and an Electric drill for the wind down legs,apart from all that I just get out and do it.
Lance C
I have had to stop taking Methotrexate as my monthly liver function tests showed an inceasing problem - to see specialist tomorrow. It was working nicely too.
-- Edited by villatranquilla on Monday 2nd of June 2014 03:31:41 PM
Olley46 said
05:13 PM Jun 2, 2014
Vic41 wrote:
We'd make a good pair Lance, my specialist started me on prednisolone for a month along with the methotrexate and megafol as he reckoned the methotrexate too that long to work, I think it was one or two tabs prednisolone for a week then half a tab for the rest of the month, then just the meth and meg, 10 mg of meth once a week and two megafol (5mg) twice a week, recently a cortisone injection in the knee and take two prednisolone when pain gets too bad (about every week) and three panadol osteo daily.
Also take tabs for other conditions as well, keeping the chemists happy though.
Geesse Vic you must rattle when you walk, or is it the steel horseshoe plates on your boots.
Lance C
Vic41 said
06:21 PM Jun 2, 2014
Olley46 wrote:
Vic41 wrote:
We'd make a good pair Lance, my specialist started me on prednisolone for a month along with the methotrexate and megafol as he reckoned the methotrexate too that long to work, I think it was one or two tabs prednisolone for a week then half a tab for the rest of the month, then just the meth and meg, 10 mg of meth once a week and two megafol (5mg) twice a week, recently a cortisone injection in the knee and take two prednisolone when pain gets too bad (about every week) and three panadol osteo daily.
Also take tabs for other conditions as well, keeping the chemists happy though.
Geesse Vic you must rattle when you walk, or is it the steel horseshoe plates on your boots.
Lance C
Cripes Lance, I haven't worn those plates on my boots since I was in the Army! But yeah, don't shake me now as I sound like a Caracas !
Pete49 said
11:54 PM Jun 2, 2014
I have psoriatic arthritis pretty bad in all my joints plus osteo in my lower spine and had my rotor cuff spur removed (growing back )and can't use methotrexate any more. My specialist now has me on embrel and a couple other things so managing ok but some days (cold ones) I stay in as it gets too bad to cope with.
Pete
the rocket said
07:18 AM Jun 3, 2014
hi, I am recently diagnosed and wondered if this has shot to pieces all my retirement plans.
Olley46 said
12:48 PM Jun 3, 2014
Stick with your plans for retirement,just battle on through the pain and enjoy life as much as possible ,time waits for no one, best of luck with you treatment rocket.
Lance C
the rocket said
05:07 PM Jun 3, 2014
Olley46 wrote:
Stick with your plans for retirement,just battle on through the pain and enjoy life as much as possible ,time waits for no one, best of luck with you treatment rocket.
Lance C
thankyou Lance.
Vic41 said
08:08 PM Jun 3, 2014
Olley46 wrote:
Stick with your plans for retirement,just battle on through the pain and enjoy life as much as possible ,time waits for no one, best of luck with you treatment rocket.
Lance C
I agree with Lance, if you're going to be in pain you may as well do something you enjoy, may even take your mind off it for awhile!
the rocket said
10:10 AM Jun 4, 2014
Vic41 wrote:
Olley46 wrote:
Stick with your plans for retirement,just battle on through the pain and enjoy life as much as possible ,time waits for no one, best of luck with you treatment rocket.
Lance C
I agree with Lance, if you're going to be in pain you may as well do something you enjoy, may even take your mind off it for awhile!
thanks. in shock at the moment,
Vic41 said
12:25 PM Jun 5, 2014
the rocket wrote:
thanks. in shock at the moment,
Don't let it put you off following your dreams rocket, there are many on the road with this and other afflictions, just manage it (with meds or whatever) and if things get too bad get some medical help along the way wherever you may be.
the rocket said
04:48 PM Jun 30, 2014
thankyou everyone. have seen specialist and yes, if I did not rattle before I sure do now. everything is improving except I have no sleep in me at night. I tried to join a group but can't find anything here in Brisbane. kind regards. and improving health to everyone. Rocket
StuKaz said
04:03 PM Feb 28, 2016
Hello, I would like to refresh this topic please. The thread mentions a lot of medications etc. What I would like to know is how you cope travelling this beautiful country. I have Rheumatoid and my husband is reluctant to travel because of this. I just want to pack up and go, enjoy my last years, no matter how many. I am in pain at home or at work, it makes no difference to me :)
Hi Everyone, Does anyone travel and have rheumatoid arthritis? Would you tell us how things are for you on the road. Thanks.
I am at home at the moment ,but I travel with severe rheumatoid arthritis, I am under a specialist at the present time,he has got me on Methotrexate two tablets a week, it is doing pretty good at the moment, but I do have some real bad days, believe it or not I get it in the jaw, in the groin, at the moment I have it in the hands and osteo as well,but I get by when I tow the van I have an Electric Jockey wheel that helps and an Electric drill for the wind down legs,apart from all that I just get out and do it.
Lance C
Hi Rocket,
I have rheumatoid and psoriatic arthritis in my hands/fingers and legs, worse in my leg at the moment, also on one tab of Methotrexate per week and 2 Megafol tabs a week to counteract the Metho tabs side effects.
I recently had a cortisone injection in my knee, was good for about a fortnight, then had to take two prednisolone (solone) cortisone tabs when the pain gets too bad, this lasts for about a week, then repeat again when it happens again (about a week later). This is in addition to the methotrexate/megafol tabs. Also take Pandaol Osteo. See the rheumatoid specialist again on Friday, see what he recommends.
-- Edited by Vic41 on Sunday 1st of June 2014 08:49:29 PM
Hi Vic
You sound like you have it as bad as me,I am also on two of those megafol as well as two Methotrexate a week, I had about 12 months on prednisolone 25grms down to 1 over twelve months every day, great tablets they were not a pain in the body any where,the only thing with them is they only cover up they don't cure, and they do have side affects.
Lance C
We'd make a good pair Lance, my specialist started me on prednisolone for a month along with the methotrexate and megafol as he reckoned the methotrexate too that long to work, I think it was one or two tabs prednisolone for a week then half a tab for the rest of the month, then just the meth and meg, 10 mg of meth once a week and two megafol (5mg) twice a week, recently a cortisone injection in the knee and take two prednisolone when pain gets too bad (about every week) and three panadol osteo daily.
Also take tabs for other conditions as well, keeping the chemists happy though.
I have had to stop taking Methotrexate as my monthly liver function tests showed an inceasing problem - to see specialist tomorrow. It was working nicely too.
-- Edited by villatranquilla on Monday 2nd of June 2014 03:31:41 PM
Geesse Vic you must rattle when you walk, or is it the steel horseshoe plates on your boots.
Lance C
Cripes Lance, I haven't worn those plates on my boots since I was in the Army! But yeah, don't shake me now as I sound like a Caracas !
I have psoriatic arthritis pretty bad in all my joints plus osteo in my lower spine and had my rotor cuff spur removed (growing back
)and can't use methotrexate any more. My specialist now has me on embrel and a couple other things so managing ok but some days (cold ones) I stay in as it gets too bad to cope with.
Pete
hi, I am recently diagnosed and wondered if this has shot to pieces all my retirement plans.
Stick with your plans for retirement,just battle on through the pain and enjoy life as much as possible ,time waits for no one, best of luck with you treatment rocket.
Lance C
I agree with Lance, if you're going to be in pain you may as well do something you enjoy, may even take your mind off it for awhile!
thanks. in shock at the moment,
Don't let it put you off following your dreams rocket, there are many on the road with this and other afflictions, just manage it (with meds or whatever) and if things get too bad get some medical help along the way wherever you may be.
thankyou everyone. have seen specialist and yes, if I did not rattle before I sure do now. everything is improving except I have no sleep in me at night. I tried to join a group but can't find anything here in Brisbane. kind regards. and improving health to everyone. Rocket
Hello, I would like to refresh this topic please. The thread mentions a lot of medications etc. What I would like to know is how you cope travelling this beautiful country. I have Rheumatoid and my husband is reluctant to travel because of this. I just want to pack up and go, enjoy my last years, no matter how many. I am in pain at home or at work, it makes no difference to me :)